Thursday, November 17, 2011

There's a first for everything...

I'm starting this because I know of a fellow MS-er that has a blog on here and I think that  this would be a good place to VENT because I think a lot of people are getting pretty tired of hearing me complain, weather I think I have a legit reason to do so, I wouldn't want to hear it all the time either. Also I think this will help me not be so negative and bottle everything up. I don't think everything will be bad news though, I do have my good days.

So I'm going to start from my beginning, the hospital visits and how everything happened.

Jan. 28th 2011
I had went on a date (believe it or not) a few days before this day and I was told "you are very stumbley" I was embarrassed, because i have never been a skinny girl, ever. And I thought the reason I was so stumbley was because I was fat. What I mean by this is you see bigger girls with no confidence always walking funny, head held down and just walking with no confidence what so ever. But I started paying attention to my walking and I started noticing it too. i also was having vision problems, when i looked to the left everything I saw was blurry and I had double vision like I was drunk 24/7 but this had happened before two times, and i figured it would go away. i had my eyes checked last time it happened to them, and the Dr. told me i could have MS or a pseudo (meaning like a) tumor or a disease only fat young girls get (way to boost my confidence doc!). Also, I was being accused of being on pills again because I was walking funny and complaining about my vision problems. I hadnt touched anything and I didn't know what was going on.

So on jan 28th I went to the ER. I had explained to them what was going on, that i was walking and seeing as if I were drunk and it had been happening for the past 3 weeks. (right before i went in to the ER I was told I probably had a brain tumor, let me tell you, I wasn't scared at all. :insert sarcasm here:

So the doctor had me walk infront of him, i couldnt even walk a straight line, I was still thinking this was because I had no confidence what so ever.

The doctor ordered a CT scan, when the results came in this is what happened:
Doctor: well, your test results came up abnormal
ME: did you say normal or abnormal?
Doctor: ABnormal
then he left the room.
It was almost 1 am at this point, I FREAKED out and called my mom knowing she worked the next day, but i was really scared that the doctor was going to tell me i was dying and only had so long to live...

Well, the doctor ordered another test, an MRI.
After these results came in, he told me i had lesions on my brain, I didn't know what those were so he explained to me that lesions are scars, I had one old one and two new ones (now i know why my vision problems had happened before).

I asked to see the MRI, he showed it to me, told me that the neurologist on property thought it could be MS and i needed to see a doctor within 3 days because I didn't have  insurance at the time, they couldn't help me much (F.U. Center Point).

Well, my mom called around, and with no luck we decided to go to KU med, because a family friends mother was actually a MS specialists nurse.

I went to the ER at KU med, where I showed them my CD that centerpoint gave me.
They had a (really cute) neurologist come down and do some tests on me.
By tests I mean, look at my disk i had brought, follow his finger, walk in front of him and he was sold! i needed to stay in the hospital for 6 days on IV steriods and they were going to run some tests, what kind of tests you ask? I'll get to that in a second.

Now, i know I have lots of tattoos and piercings, but one thing I DO NOT like are needles, I can't stand them.
He tells me everything that he wants done, an IV of steriods for 6 days, another MRI, and something called a lumbar puncture. I asked what that was and he tells me its like a spinal tap, where they will take out some spinal fluid and test it. I was also given some blood tests.

When the lumbar puncture was done I don't remember, infact i don't remember much of the 7 days I was in the hospital for, I was either sleeping or so drugged up that i don't remember anything.
My second MRI showed that i had several lesions on my spine, by several i'm not sure how many that means, but it is scary to think about. I want to know what my spine looks like and my brain, like I want to see the scars with out looking at the MRI-s. Well, kind of, I don't want to have to see them all the time, I think that I would be depressed 24/7, maybe thats because Im superficial, I am not sure...?

So when I thanked everyone for coming i don't remember them all and that made me feel like a terrible person.
Anyway, this hospital is amazing. I was told everything and anything I wanted to know about MS and then some.
 Now I still have questions and live life everyday with curiosity but everyone would because no one has Ms the same, no one. Kind of like a finger print no one is the same.

Well, i have been diagnosed for 9 months now, which is insane to me because it feels like it was yesterday.

I will continue this later but at least I have the beginning out of the way. This is my story and it's only beginning now.

2 comments:

  1. K -- You are an amazing strong woman & we will make it through this together. I like to think that MS is only for STRONG fighters. & I'm going to keep thinking that, until I'm proven wrong! ((me, wrong... NEVER))

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  2. Kaitlyn,

    This is a great post - and I don't see it as venting... In fact, if it were me, I would be thoroughly enthused if I had the first visit like you had. I think that posts like this are important for people to know and to understand that don't have MS. We look okay on the outside, but we are not, we are working very hard to maintain that "normal" appearance. I never used to pick which shoes to wear depending on how I felt.... "Hmmmm today I am kind of tired, better wear flats so I don't fall down". And the fact that when I get good sleep I see better... Weird. I blog about my MS as well. www.lisalesliefitnessblog.com. I am kind of like Ashley above said, never ever give up, never let MS win. You have MS, but it doesn't have you, it doesn't define who you are. And seriously all those people said those rude things to you?? They should not be allowed to talk to people..... I have been dx for 7 years now and it still feels like yesterday. <3 Lisa

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